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Leading the way in transplantation

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Our network

Below you will find information about our partner organisations, with which we are proud to share the core principles and mission presented in this document.

If you or your organisation would like to get involved in our initiatives, please contact Giovanna Rossi (giovanna.rossi@esot.org).

Alliance for Pulmonary Hypertension
Belgium
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Logo AIPIItalian Pulmonary Hypertension Association (AIPI)
Italy
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ALCER LogoThe National Federation of Associations ALCER
Spain
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Associação Portuguesa de Insuficientes Renais (APIR)
Portugal
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Italian Association for Liver Transplant Patients
Italy
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Association of patients with respiratory failure and lung transplantation (APRFLT)
Bulgaria
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Bulgarian Society of Patients with Pulmunary Hypertention (BSPPH)
Bulgaria
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Logo LeverforeningenDanish Liver Association
Denmark
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European Kidney Patients’ Federation
Austria
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European Transplant & Dialysis Sports Federation (ETDSF)
Ireland
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Logo FInnish association liver and kidneyThe Finnish Kidney and Liver Association
Finland
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France heart and/or lungs transplants (FGCP)
France
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National Federation of Liver Patients and Transplant Patients (FNETH)
Spain
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FOKUS Patient
Sweden
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Logo GLIGlobal Liver Institute – GLI
United States and Italy
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Hellenic Community for Pulmonary Hypertension
Greece
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Hellenic Cystic Fibrosis Association
Greece
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Logo MODMOD – More organ donation
Sweden
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Pulmonary Hypertension Association Europe
Austria
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Renaloo
France
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Slovenian Transplant Association
Slovenia
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Trans-Forme
France
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Logo TransplantouxTransplantoux
Belgium
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Logo Unione Trapiantati PadovaLung Transplant Patients Union – Padova
Italy
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Voice of VCA Patients
Austria
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World Transplant Games Federation
United Kingdom
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Steering group

ESOT leaders and patient representatives together form the core group responsible for the development and implementation of the patient inclusion initiative.

Peter Carstedt
Patient advocate
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Pisana Ferrari
Patient advocate
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Anna Forsberg
Councillor

2023-2027

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Daniel Gallego
Patient advocate
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Nichon Jansen
EDTCO Past Chair 2021-2022
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Fiona Loud
Patient advocate
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Hannah Maple
ELPAT Chair

2021-2024

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Gabriel Oniscu
ESOT President

2023-2025

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David Paredes-Zapata
EDTCO Past Chair
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Colin White
Patient advocate
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The ESOT Social Media Ambassadors

The ESOT Social Media Ambassador programme is dedicated to the promotion of the ESOT initiatives through the various existing social media channels.

The ESOT patient inclusion initiative counts 5 #ESOTAmbassadors, active on Twitter. They support ESOT’s efforts to promote dialogue between healthcare professionals and the patient network. In addition, they generate awareness about the ESOT Patient Inclusion Initiative by channelling messages on behalf of the organisation through social media:

Follow ESOT on Twitter @ESOTtransplant

Are you a patient or a representative of a patient organisation? Would you like to join the ESOT Social Media Ambassador programme? Contact Giovanna Rossi (giovanna.rossi@esot.org).

Questions?

Giovanna Rossi
Senior Project Manager
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Supriya Barve
Project Coordinator
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