ESOT started building a platform to host pan-European registries in January 2021, leveraging on the experience of its section ELITA which had been successfully coordinating the European Liver Transplant Registry since 1985. The platform was thought of as modular, scalable and able to receive information on different organ transplants: a one-stop solution for European national and local authorities to contribute data and share practice with the community.
The ESOT registry platform will serve a variety of stakeholders, including competent national authorities, national/regional/local transplant registries, national and international scientific review committees, transplant centres and individual professionals, patients and donors (families), and the general public. To take into consideration all voices of the transplant community, the ESOT Council has put much effort into establishing an inclusive governance of the registry project.
ESOT raises funds according to the strategy agreed upon by the Steering Committee with the aim of maintaining the technical infrastructure, providing technical support for users of the registries and widening contacts with participating or interested parties, scientific consortia, the industry and patient associations.
In agreement with its bylaws (Art. 7), ESOT calls for donations, sponsorship contributions, inheritances and legacies to support the registries platform project.