In the past few years, the European Society for Organ Transplantation (ESOT) has been working with transplant patient organisations throughout Europe to foster cooperation between healthcare professionals and patients and to broaden patient participation in its own activities.
During the ESOT 2019 congress, ESOT hosted a meeting of 19 transplant patient organisations from 13 European countries. The meeting served as a space to exchange experiences, identify unmet needs, and develop a plan for future initiatives. Inspired by that meeting, and under the guidance of EDTCO, ELPAT and ETAHP, we launched several initiatives aimed at listening to the needs of the patient community and building a platform of mutual understanding.
TLJ 2.0 featured a full stream of mutual understanding and learning devoted to healthcare professionals and patients. In April 2020, ESOT launched a survey for transplant patients with the aim of gaining a deeper understanding of their experience and concerns. The programme of the learning workstream was developed on the basis of the findings from this survey; TLJ 2.0 speakers included transplant professionals as well as representatives of patient organisations, in line with ESOT’s commitment to patient inclusion.
View the webinar recording to hear about the main concerns of transplant patients and transplant professionals and to learn about strategies to better cope with the uncertainty arising from the COVID-19 pandemic.
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