ESOT works with transplant patient organisations throughout Europe to foster cooperation and dialogue between patients and healthcare professionals, to ensure patient representation and participation in ESOT activities, and to promote health and quality of life among the transplant population.
Our activities aim to achieve these goals and we welcome the contribution and participation of all transplant professionals, patient organisation representatives, and individual patients and caregivers.
The ESOT-ETPO (European Transplant Patient Organisations) alliance is a collaborative entity established by the European Society for Organ Transplantation (ESOT) and Transplant Patient Organisations that aims to bring together healthcare professionals and people with transplants.
The mission of the ESOT-ETPO alliance is to promote realistic medicine in organ donation and transplantation. The alliance aims to achieve this by empowering people with transplants, encouraging and facilitating a meaningful dialogue between patients, organ donors and their families, caregivers and transplant professionals to ensure that their views and experiences are represented.
According to an ESOT survey of 330 patients from more than 27 countries, uncertainty characterises the transplant patient’s life, with fear of graft rejection being the most widespread concern. The TLJ 2.0 programme featured discussions on uncertainty while on the waiting list, uncertainty about accepting an organ for transplantation, and graft rejection. Representatives of patient organisations and healthcare professionals shared their experiences and exchanged ideas on these topics in a series of preparatory webinars and during the main sessions of the Learning Workstream at TLJ 2.0.
We would like to thank our Partners for their ongoing support with our Patient Inclusion Initiative