Within ELPAT, there are seven working groups. Each working group addresses a specific topic in the field of ethical, legal and psychosocial aspects of organ transplantation. The purpose of these study groups is to elaborate on these topics in-depth, and to study the possibilities for European uniformity / guidelines on that specific topic. The seven working groups are:
Deceased Donation (DD)
Chair: Dale Gardiner (United Kingdom)
Ethical and Legal Issues (ELI)
Chairs: Antonia Cronin (United Kingdom) and Anne dalle Ave (Switzerland)
Living Organ Donation (LOD)
Chair: Annette Lennerling (Sweden)
Organ Tourism and Paid Donation (OT)
Chairs: Frederike Ambagtsheer (The Netherlands) and Séan Columb (United Kingdom)
Pediatric Donation and Transplantation (PEDAT)
Chairs: Angie Scales (United Kingdom) and Marion Siebelink (The Netherlands)
Psychological Care for Living Donors and Recipients (PC)
Chairs: Inês Mega (Portugal) and Christina Papachristou (Germany)
Public Issues (PI)
Chair: David Rodriguez-Arias (Spain)
I. INTRODUCTION & HISTORY
The European Platform on Ethical, Legal and Psychosocial Aspects of Organ Transplantation (henceforth referred to as ELPAT) was established in April 2007 at an international conference in Rotterdam, The Netherlands. ELPAT is a European platform that brings continuity and progress in European research and dialogue on ‘Ethical, Legal and Psychosocial Aspects of organ Transplantation’. ELPAT was incorporated on nineteen February two thousand and eight as a Section into the European Society for Organ Transplantation (henceforth referred to as ESOT).
With reference to Article 10 of the BYLAWS of ESOT, ELPAT can formulate regulations. These regulations cannot conflict with the law and with the statutes and regulations of ESOT.
This document describes the regulations of ELPAT which have been approved by the ELPAT Assembly.
ELPAT is a Section of ESOT specifically dedicated to the ethical, legal and psychosocial aspects of organ donation and transplantation. ELPAT also advises the ESOT Executive and Council and other stakeholders including healthcare professionals working in donation and transplantation on aforementioned aspects.
The aims of ELPAT are:
– to create a multidisciplinary scientific forum for ethical, legal and psychosocial activities in the field of donation and/or transplantation;
– to stimulate collaboration, innovation and knowledge exchange on ethical, legal and psychosocial aspects of donation and transplantation;
– to bring continuity and structure to the dialogue on complex ethical, legal and psychosocial issues in organ donation and transplantation;
– to contribute to development of clinical practice, research, education, and policy;
– to give guidance and to share best practice to professionals on ethical, legal and psychosocial aspects of organ donation and transplantation.
ELPAT activities to achieve these aims are:
– organizing regular, international, open and invitational conferences, meetings and symposia;
– initiate, lead, and participate in research;
– disseminate knowledge through publications and meetings.
All ELPAT members are ESOT members, who specify their affiliation with ELPAT. ELPAT affiliates have the rights and benefits derived from being ESOT members and must comply with their responsibilities as ESOT members. The ESOT membership rules as stated in Articles 4-5 of the Bylaws apply to ELPAT affiliates.
ELPAT consists of the following bodies: ELPAT Assembly, ELPAT Board, seven ELPAT Working Groups, and Secretariat.
The ELPAT Assembly consists of ELPAT affiliates. These are ESOT members who specify their affiliation with ELPAT during registration or thereafter. The ELPAT assembly convenes every two years during an ESOT or ELPAT conference.
The ELPAT Board
The Board consists of the Chair, Vice-Chair, and Working Group Chairs. Only ELPAT affiliates can become members of the ELPAT Board. ELPAT is governed by the ELPAT Board. The ELPAT Board defines the theme of each Working Group. The Board convenes at least once a year. The Chair convenes the Board meetings. Board meetings are chaired by the ELPAT Chair (or the Vice-Chair in the absence of the Chair). Decisions are made by a simple majority vote by all Board members.
The Chair leads ELPAT. The Chair of ELPAT has a seat in the ESOT Council. The ELPAT Vice-Chair automatically becomes ELPAT Chair at the end of the three-year term as Vice-Chair (see procedure in section 2.b.). The appointment of the ELPAT Chair is confirmed by the ESOT Council and is communicated to the ELPAT affiliates.
The tasks of the Chair include but are not limited to:
– liaising with the ESOT Executive and Council;
– liaising with the Working Group Chairs;
– coordinating and monitoring the scientific activities and output of the Working Groups;
– convening and chairing the ELPAT Board meetings;
– identifying, developing and maintaining stakeholder relationships;
– organizing and facilitating ELPAT meetings, symposia and conferences.
The Vice-Chair has a seat on the ELPAT Board and supports the Chair in leading ELPAT. Affiliates of good standing with ESOT who have been a member of ELPAT for a minimum of three years can be nominated to become Vice-Chair. The ELPAT Vice-Chair is nominated by a minimum of 2 affiliates and appointed by the ELPAT Board for a period of three years. The Vice-Chair is elected by ELPAT affiliates by simple majority vote. The ELPAT Chair has deciding vote in case of a tie-break. The Vice-Chair will automatically become ELPAT Chair at the end of the three-year term as Vice-Chair. The appointment of ELPAT Vice-Chair is confirmed by the ESOT Council and is communicated to the affiliates.
The tasks of the Vice-Chair include but are not limited to:
– acting as central point of contact for ELPAT members, stakeholders and other key persons;
– together with the ELPAT Chair, organizing and facilitating ELPAT meetings, symposia and conferences;
– identifying new topics and strategies for the platform;
– represents ELPAT at ESOT Council meetings in the absence of the Chair.
ELPAT Working Groups
ELPAT affiliates can take part in one or more of the seven Working Groups. Each Working Group focuses on a topic related to ethical, legal and psychosocial aspects of organ donation and transplantation. Each Working Group is led by a Working Group Chair and Co-Chair. The Working Groups convene twice every three years.
3.a. Working Group Members
Working Group members are ELPAT affiliates who are invited to participate in one of the Working Groups.
Working Group Chair and Co-chair
There is one Chair and one Co-Chair per working group. The ELPAT Working Group Chair and Co-Chair are nominated and elected by the ELPAT affiliates for a fixed term of 3 years. The Working Group Chair and Co-Chair are elected for a period of three years. The Working Group Chair and Co-Chair may be re-elected once. Either the working group Chair or Co-Chair has a seat in the ELPAT Board and at least one is present at the ELPAT Board meeting.
The task and role of the Working Group Chair and Co-chair is to:
– encourage application for funding for ELPAT activities;
– outline and develop the short- and long-term scientific research strategy for their Working Group;
– stimulate production of output;
– help prepare and organize the ELPAT conferences and events;
– introduce new affiliates;
– stimulate active participation of affiliates.
Secretarial support for the administration of ELPAT, nominations and elections, and the coordination of Section activities is provided by the ESOT Office.
The platform convenes for an indefinite length of time and has no profit motive.
Income and expenses are included in the ELPAT budget cycle, which is periodically presented by the ELPAT Chair to ESOT and is pursuant to its approval. ELPAT can acquire funds. These funds can be earmarked within the administration of ESOT for the benefit of ELPAT in collaboration with the ESOT Treasurer and Executive.
A suggested change of the ELPAT Regulations is proposed by the Board and approved by the ELPAT Assembly (affiliates). Changes to the regulations are confirmed by the Council of ESOT.
Dissolution and settlement of ELPAT occurs in accordance with the bylaws of ESOT.
In all matters not provided by these regulations, decisions are made by the ELPAT Board in agreement with the Council of ESOT.