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Patient advocate

Pisana Ferrari has a background in Political Science and International Law. After a few years’ experience in the European Parliament and in EU Affairs, she has worked in PR, communication and event organisation since 1986. After her double lung transplant in 2002 she has also been active as a patient advocate for pulmonary hypertension (PH), and for organ donation and transplant, in her own country, Italy, and at European level. She is Past President and Member of the Board of AIPI, Italian Pulmonary Hypertension Association, which she founded with other PH patients in 2001, and has collaborated with PHA Europe, the European Pulmonary Hypertension Association, for over thirteen years. For both AIPI and PHA Europe she contributed to the coordination of awareness and advocacy campaigns, the organisation of conferences and events, the production of educational materials and hands-on guides for patients, and the dissemination of information via web and social media channels. Pisana has co-authored a number of articles for scientific journals on the impact of PH on the lives of patients and carers and on patient empowerment and self-management. She has been invited to present the patient perspective at events organised, inter alia, by patient associations, professional societies, NGOs and industry (e.g. ERS, ESC, ESOT, EURORDIS, EUDONORGAN, WSPH, DIA). She has also been invited to provide the patient input in EMA scientific procedures, and has served on different task forces within the WSPH, ERS and EURORDIS. Pisana is still active in the communications field and, since 2017, has been working as digital content writer and social media manager for an international language service provider.