What can we help you find?

Leading the way in transplantation

Filter results for:

Our network

Below you will find information about our partner organisations, with which we are proud to share the core principles and mission presented in this document.

If you or your organisation would like to get involved in our initiatives, please contact Supriya Barve (supriya.barve@esot.org)

Alliance for Pulmonary Hypertension
Belgium
Read Profile
Logo AIPIItalian Pulmonary Hypertension Association (AIPI)
Italy
Read Profile
ALCER LogoThe National Federation of Associations ALCER
Spain
Read Profile
Associação Portuguesa de Insuficientes Renais (APIR)
Portugal
Read Profile
Italian Association for Liver Transplant Patients
Italy
Read Profile
Association of patients with respiratory failure and lung transplantation (APRFLT)
Bulgaria
Read Profile
Bulgarian Society of Patients with Pulmunary Hypertention (BSPPH)
Bulgaria
Read Profile
Logo LeverforeningenDanish Liver Association
Denmark
Read Profile
European Kidney Patients’ Federation
Austria
Read Profile
European Transplant & Dialysis Sports Federation (ETDSF)
Ireland
Read Profile
Logo FInnish association liver and kidneyThe Finnish Kidney and Liver Association
Finland
Read Profile
France heart and/or lungs transplants (FGCP)
France
Read Profile
National Federation of Liver Patients and Transplant Patients (FNETH)
Spain
Read Profile
FOKUS Patient
Sweden
Read Profile
Logo GLIGlobal Liver Institute – GLI
United States and Italy
Read Profile
Hellenic Community for Pulmonary Hypertension
Greece
Read Profile
Hellenic Cystic Fibrosis Association
Greece
Read Profile
Logo MODMOD – More organ donation
Sweden
Read Profile
Pulmonary Hypertension Association Europe
Austria
Read Profile
Renaloo
France
Read Profile
Slovenian Transplant Association
Slovenia
Read Profile
Trans-Forme
France
Read Profile
Logo TransplantouxTransplantoux
Belgium
Read Profile
Logo Unione Trapiantati PadovaLung Transplant Patients Union – Padova
Italy
Read Profile
Voice of VCA Patients
Austria
Read Profile
World Transplant Games Federation
United Kingdom
Read Profile

Steering group

ESOT leaders and patient representatives together form the core group responsible for the development and implementation of the patient inclusion initiative.

Peter Carstedt
Patient advocate
Read Profile
Pisana Ferrari
Patient advocate
Read Profile
Anna Forsberg
Councillor

2023-2027

Read Profile
Daniel Gallego
Patient advocate
Read Profile
Nichon Jansen
EDTCO Past Chair 2021-2022
Read Profile
Fiona Loud
Patient advocate
Read Profile
Hannah Maple
ELPAT Chair

2021-2024

Read Profile
Gabriel Oniscu
ESOT President

2023-2025

Read Profile
David Paredes-Zapata
EDTCO Past Chair
Read Profile
Colin White
Patient advocate
Read Profile

The ESOT Social Media Ambassadors

The ESOT Social Media Ambassador programme is dedicated to the promotion of the ESOT initiatives through the various existing social media channels.

The ESOT patient inclusion initiative counts 5 #ESOTAmbassadors, active on Twitter. They support ESOT’s efforts to promote dialogue between healthcare professionals and the patient network. In addition, they generate awareness about the ESOT Patient Inclusion Initiative by channelling messages on behalf of the organisation through social media:

Follow ESOT on Twitter @ESOTtransplant

Are you a patient or a representative of a patient organisation? Would you like to join the ESOT Social Media Ambassador programme? Contact Supriya Barve (supriya.barve@esot.org).

Questions?

Supriya Barve
Project Coordinator
Read Profile