Archives: Team Members

Colin White 
National Projects Manager with the Irish Kidney Association

Colin is from Ireland and is the National Projects Manager with the Irish Kidney Association. He is also currently the Honorary Treasurer of the World Transplant Games Federation and Honorary Secretary of the European Transplant & Dialysis Sports Federation. He has extensive experience speaking about organ donation to a variety of audiences both in Ireland and internationally. With a background in teaching and working with not for profit organisations he is passionate about empowering patients to take an active role in their own healthcare and sees transplantation as a step on their treatment journey, not the final destination.

Fiona Loud, Kidney Care UK, UK
Fiona Loud has been policy director of Kidney Care UK since 2013. Previously Director of the Kidney Alliance, she led and co-authored a kidney community review of kidney care, Kidney Health: Delivering Excellence. She is involved with numerous other groups, working to improve standards of care for kidney patients. She set up and chairs the UK Renal Registry patient council and has contributed as a lay representative to many of the kidney guidelines produced by NICE (the National Institute of Health and Social Care). She is lay chair of a local hospital organ donation committee and vice chair of her local kidney patient association at another local hospital. Fiona spent 5 years on dialysis after her kidneys failed, before receiving a transplant from her husband in late 2006. She has a genetic condition called tuberous sclerosis which alongside 2 episodes of kidney cancer led to her kidneys failing. She is a Fellow of the British Renal Society and was one of the Health Service Journal Top 50 patient leaders. She was profiled in the Lancet.

Peter Carstedt (Sweden) is the founder and leader of MOD–More Organ Donation, a non-profit advocating that no one should die on the waiting list in Sweden. He is the co-founder of Forum Lead Patient, another NGO to empower and support the patient movement in Sweden; and he was recently appointed by the government to be a member of the Swedish Task Force for Healthcare and Life Science. He received a kidney 10 years ago and has a Master’s degree in business management.

Pisana Ferrari has a background in Political Science and International Law. After a few years’ experience in the European Parliament and in EU Affairs, she has worked in PR, communication and event organisation since 1986. After her double lung transplant in 2002 she has also been active as a patient advocate for pulmonary hypertension (PH), and for organ donation and transplant, in her own country, Italy, and at European level. She is Past President and Member of the Board of AIPI, Italian Pulmonary Hypertension Association, which she founded with other PH patients in 2001, and has collaborated with PHA Europe, the European Pulmonary Hypertension Association, for over thirteen years. For both AIPI and PHA Europe she contributed to the coordination of awareness and advocacy campaigns, the organisation of conferences and events, the production of educational materials and hands-on guides for patients, and the dissemination of information via web and social media channels. Pisana has co-authored a number of articles for scientific journals on the impact of PH on the lives of patients and carers and on patient empowerment and self-management. She has been invited to present the patient perspective at events organised, inter alia, by patient associations, professional societies, NGOs and industry (e.g. ERS, ESC, ESOT, EURORDIS, EUDONORGAN, WSPH, DIA). She has also been invited to provide the patient input in EMA scientific procedures, and has served on different task forces within the WSPH, ERS and EURORDIS. Pisana is still active in the communications field and, since 2017, has been working as digital content writer and social media manager for an international language service provider.