18 September 2023, 18:30 – 19:30 EEST
Meeting room: MC 3.2
Target Audience: Representatives of the ESOT-ETPO Alliance Network and representatives of Patients’ societies and Associations, Patients Advocates
Invited speakers and moderators: Ioanna Alysandratou (Greece); Peter Carstedt (Sweden); Daniel Gallego (Spain); Nichon Jansen (The Netherlands); Vincent Karam (France); Fiona Loud (UK); Hannah Maple (UK); David Paredes (Spain); Colin White (Ireland)
Final Programme
Session 1 Welcome and introduction
An introduction to the ESOT patient inclusion initiative and an update on the activities of the network of the ETPO Alliance
13:00 – 13:05 Welcome
Hannah Maple, UK
13:05 – 13.25 ESOT – ETPO Alliance: what does it mean and how is it developed?
David Paredes, Spain
Session 2 Patients as partners in policy development
Examples of how patient associations and society can have a role and an impact on the policies of their countries. Sharing best practice and activities of interest for the network of patients’ organizations
Moderator – Daniel Gallego, Spain
13:25 – 13:35 Honouring the gift of donation: utilising organs for transplant
Fiona Loud, UK
13:35 – 13.45 Honoring the will of the public: how we changed the law in Sweden to increase the number of organ donors
Peter Carstedt, Sweden
13.45 – 13.55 European Transplant App: “Life Lines”
Ioanna Alysandratou, Greece
Session 3 ESOT Patient inclusion initiative, beyond the Congress
Current and future activities of interest for the network of the Patients Associations. Information on how to get engaged.
Moderator – Colin White, Ireland
13:55 – 14:15 An overview of all the current and future activities of the ESOT – ETPO alliance
Nichon Jansen, The Netherlands
14:15 – 14.25 My Life My Health project: an overview
Hannah Maple, UK
14.25 – 14.40 Registries to monitor follow up of transplant recipients and living donors
Monitoring health after transplantation – A call for a European effort
Vincent Karam, France
14.40 – 14.55 Open discussion
14.55 – 15.00 Closing and wrap up
This meeting is by invitation only, and participation is restricted to representatives of the patient societies and associations that are part of the ETPO Alliance network. For further information, please contact: giovanna.rossi@esot.org
