My Life My Health toolkit box

The project

Results of a survey that was held in 2020 by ESOT (European Society for Organ Transplantation) and the steering committee of the patient inclusion initiative showed that people who received a transplant wish to have a patient-centred rehabilitation approach (1).

The project My Life My Health (MLMH) is a reply to the need expressed by patients :

• A serious effort to promote the person-centred care approach, with the aim to drive a paradigm shift in transplant care – Focus on the person with an organ, NOT the organ in the person
• The project focused on the Adaptation process through the development of different tools
• Deliberately includes spouses and relatives and recognize their role in the transplantation journey as they navigate through their own adaptation process

The project MLMH was developed to achieve three main objectives:

1. Patient Literacy, Learning and Adaptation: Support the patient learning journey with a focus on individual learning needs
2. Healthcare Professionals Awareness: Raise HCP awareness and HCP capability to support the individual patient’s adaptation and Health Balance, working as a team
3. Nurse Empowerment: Empower transplant nurses as critical stakeholders in day-to-day self-management support to achieve objectives 1 and 2

(1) Jansen, N., Maple, H., Forsberg, A., Loud, F., McColaugh, L., Murphy, M., Fuertes, J., Gallego, D., Paredes, D. and (2021), Building a bridge between patients and transplant healthcare professionals – a descriptive study. Transpl Int, 34: 2098-2105. https://doi.org/10.1111/tri.14111

The toolkit

The MLMH toolkit box includes a number of materials for the person who received a transplant and their dear ones:

• The Box – An actual paper box that the transplant team offers to the person who received a transplant and their dear one

The box includes:

• The Booklet – A booklet dedicated to the person who received a transplant, with information about the adaptation process
• The Workbook – A ”workbook” for the transplanted person to explore and work on the different aspects of life
• Being related – A booklet for partners, relatives and dear ones to support their adaptation process

The MLMH toolkit box also includes materials for the HCPs and the transplant team

• The Poster – A poster which highlights different aspects of life that may be affected by the transplanted person
• The Brochure – A brochure for the HCPs and the transplant team explaining the importance of person-centred care and the foundation of a person-centred rehabilitation process

The “My Life – My Health” toolbox is also available in different languages.

All projects on this page were developed under a healthcare collaboration between the European Society for Organ Transplantation (ESOT) and Takeda that aims to benefit patient care. All content has been developed independently by ESOT.