The aim of the Education Committee (EC) is to coordinate ESOT’s efforts to advance multidisciplinary education for transplant professionals at all career levels and to contribute to their professional development.
The Basic Science Committee promotes scientific issues and transplantation research within ESOT. An active basic science community and an efficient translation of innovation into the clinic are crucial for the future of transplantation medicine.
The European Transplant Allied Healthcare Professionals (ETAHP) reaches out to allied healthcare professionals throughout Europe in order to ensure the best care possible for all transplant patients, with the aim to optimize patient outcomes.
The Young Professionals in Transplantation (YPT) is the Network for Junior Transplant professionals of ESOT, representing all young transplant clinicians and scientists who are beginning a career in transplantation and organ donation.
The mission of ECTORS is to provide a forum for discussing and stimulating novel developments in the fields of cellular therapies in organ transplantation, organ regeneration and generation of new organs from stem cells and biomaterials.
ECTTA is the forum for experience exchange on treatment of patients with end-stage heart and lung failure. Our aim is to improve outcomes for the patients.
EDTCO aims to support health care professionals to provide clinically effective programmes on organ and tissue donation, procurement and transplantation.
EKITA is the Organ Expert Section of ESOT on kidney transplantation in Europe, providing a forum for kidney transplantation professionals to exchange scientific information and views aimed at providing the best service to European patients .
The European Liver and Intestine Transplant Association (ELITA), previously known as the European Liver Transplant Association (ELTA), is a section of ESOT. Its membership represents the expertise on liver and intestinal transplantation in Europe.
ELPAT is a European platform that brings continuity and progress in European research and dialogue on "Ethical, Legal and Psychosocial Aspects of organ Transplantation". ELPAT currently consists of over 160 experts from more than 25 European countries.
EPITA is established to provide a forum for those working in the field of pancreas and islet of Langerhans transplantation or any other alternative form of beta cell replacement in Europe, to exchange scientific information and views related primarily to providing the best service for patients in Europe requiring pancreas or islet transplantation.
VCA has opened a new era in the field of transplantation, reconstructive and restorative surgery. This Section brings together 10 representatives of major European teams at the forefront in this field.
History
ESOT started building a platform to host pan-European registries in January 2021, leveraging on the experience of its section ELITA which has been successfully coordinating the European Liver Transplant Registry since 1985. The platform was thought of as modular, scalable and able to receive information on different organ transplants: a one-stop solution for European national and local authorities to contribute data and share the practice with the community.
Governance
The ESOT registry platform will serve a variety of stakeholders, including competent national authorities, national/regional/local transplant registries, national and international scientific review committees, transplant centres and individual professionals, patients and donors (families), and the general public. To take into consideration all voices of the transplant community, the ESOT Council has put much effort into establishing an inclusive governance of the registry project.
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Funding
ESOT raises funds according to the strategy agreed upon by the Steering Committee and to maintain the technical infrastructure, providing technical support for users of the registries and widening contacts with participating or interested parties, with scientific consortia, the industry and patient associations. In agreement with its bylaws (Art. 7), ESOT calls for donations, sponsorship contributions, inheritances and legacies to support the registries platform project.
Please contact us if you want to support this pan-European endeavour.
A comprehensive concept
The ESOT registry platform will be built as a modular, scalable platform able to receive information on different organ transplants: it will be a one-stop solution for European national and local authorities to contribute data and share the practice with the whole of the community. The registry will gather information on transplant recipients and living donors when applicable. In addition, it will feature a module for collecting data directly from patients (patient-reported outcomes).
A collaborative effort
It is the wish of ESOT to pursue and strengthen collaboration with existing and future partners, including national and local authorities, transplant centres, patient organisations, and academia. The Governance of the registry will be open and transparent and ensure the representation of all stakeholders. In addition to Europe, ESOT will seek collaboration with non-European transplant registries and authorities and promote global studies on organ transplantation. ESOT will fund the project via a diverse financial portfolio with no influence of any funding bodies in the governance and all the scientific elements of the registries.
A service for the community
Sharing best practices and improving patient outcomes and quality of life are the ultimate goals of the ESOT registry platform. This will be achieved by providing the transplant community with a solid set of data to analyse from different points of view. ESOT will issue annual reports on the collected data and publish aggregated data anonymously, openly and transparently, providing the community with conclusions and aggregated raw data. The hosted registries will allow individual contributors to compare their data with the aggregated data, accessible at any time via personalised tableaus, thus directly serving national and local communities.
[1] The Effect of Differing Kidney Disease Treatment Modalities and Organ Donation and Transplantation Practices on Health Expenditure and Patient Outcomes (EDITH).
Luciano Potena
Gabriel Oniscu
Olivier Thaunat
Geir Mjoen
Devi Mey