The aim of the Education Committee (EC) is to coordinate ESOT’s efforts to advance multidisciplinary education for transplant professionals at all career levels and to contribute to their professional development.
The Basic Science Committee promotes scientific issues and transplantation research within ESOT. An active basic science community and an efficient translation of innovation into the clinic are crucial for the future of transplantation medicine.
The European Transplant Allied Healthcare Professionals (ETAHP) reaches out to allied healthcare professionals throughout Europe in order to ensure the best care possible for all transplant patients, with the aim to optimize patient outcomes.
The Young Professionals in Transplantation (YPT) is the Network for Junior Transplant professionals of ESOT, representing all young transplant clinicians and scientists who are beginning a career in transplantation and organ donation.
The mission of ECTORS is to provide a forum for discussing and stimulating novel developments in the fields of cellular therapies in organ transplantation, organ regeneration and generation of new organs from stem cells and biomaterials.
ECTTA is the forum for experience exchange on treatment of patients with end-stage heart and lung failure. Our aim is to improve outcomes for the patients.
EDTCO aims to support health care professionals to provide clinically effective programmes on organ and tissue donation, procurement and transplantation.
EKITA is the Organ Expert Section of ESOT on kidney transplantation in Europe, providing a forum for kidney transplantation professionals to exchange scientific information and views aimed at providing the best service to European patients .
The European Liver and Intestine Transplant Association (ELITA), previously known as the European Liver Transplant Association (ELTA), is a section of ESOT. Its membership represents the expertise on liver and intestinal transplantation in Europe.
ELPAT is a European platform that brings continuity and progress in European research and dialogue on "Ethical, Legal and Psychosocial Aspects of organ Transplantation". ELPAT currently consists of over 160 experts from more than 25 European countries.
EPITA is established to provide a forum for those working in the field of pancreas and islet of Langerhans transplantation or any other alternative form of beta cell replacement in Europe, to exchange scientific information and views related primarily to providing the best service for patients in Europe requiring pancreas or islet transplantation.
VCA has opened a new era in the field of transplantation, reconstructive and restorative surgery. This Section brings together 10 representatives of major European teams at the forefront in this field.
ESOT is dedicated to the pursuit of clinical and research excellence and improving patient outcomes.
A core ESOT mission is to promote sharing of scientific information and building of evidence-based international practice, policies and medical guidelines.
To this aim, ESOT has decided to strengthen its engagement in the collection of data on organ transplantation, and is launching a multi-organ, pan-European registry on transplant recipients and living donors. The European Commission supports the development of the ESOT multi-organ registry and contributes to its preparation.
The registry will gather information on both transplant recipients and living donors, when applicable. In addition, it will feature a module for collecting information directly from patients (patient reported outcomes).
Subscribing to our patient focused mailing list is the best way stay up to date with all patient focused initiatives from or related to ESOT.
Living your life after transplantation. Patient-centred approach and peer support network
The period following transplantation can bring many physical, emotional and social challenges that transplant recipients need to navigate.
Read more
Staying healthy
For recipients of life-saving transplants, the path to improved health extends far beyond the moment of donation. It is part of a lifelong journey that begins even before the procedure and continues throughout their lifetime, with positive lifestyle changes, including physical activity, playing a crucial role in their ongoing well-being.
ESOT recognises the importance of value-based care as an essential part of delivering improved treatment for transplant patients and is committed to working alongside patient representatives to help shape equitable, sustainable, and appropriate learning resources that address the needs of the patient community. Our value-based care domain is led by leading experts in the field of organ transplantation and focuses on topics such as:
The ESOT Congress 2021 was held from 29th August until 1st September, 2021 in Milan, Italy.
Save the date: 28th August, 2021.
The members of the steering group of the ESOT-ETPO Alliance organised two appointments in conjunction with the activities happening at the ESOT Congress 2021.
Advisory board of the ESOT-ETPO alliance
28th August, 2021 from 15.00 to 17.00 (CEST)
This meeting is free and open to the representatives of patient societies and associations and to patient advocates. Participation is possible either in person or online.
For information on how to register please contact: giovanna.rossi@esot.org
Online Symposium
28th August, 2021 from 18.00 PM (CEST)
“When every small step is a step forward. Being physically active after solid organ transplantation”
What do we know about physical activity after solid organ transplantation?
What is the patient experience with physical activity?
How can one get started and hold on?
The symposium will address these questions while providing accessible information and practical advice. Speakers include physical therapists as well as people with transplants who will share their experience and insights.
A meeting of several European transplant patient organisations took place on 14 September 2019 in Copenhagen. Attendees included patients, patient associations representatives and active members, and representatives of ESOT Sections and Committees (EDTCO – transplant coordinators; ELPAT – ethical, legal and psycho-social aspects of transplantation; ETAHP allied health care professionals).
19 organisations from 13 European countries were represented at the meeting.
The takeaway messages and key points of the meeting were used as a base to build the activities of the group.
The 11h EPITA* Symposium (25-26 January, 2021), for the second year, included in the official programme of the event a session dedicated to the Patient inclusion initiative.
Speakers included transplant professionals as well patients advocates, invited to share their experience.
The topics discussed were:
*EPITA is The European Pancreas and Islet Transplant Association of ESOT
Transplantation Learning Journey (TLJ 2.0), featured a full stream of mutual understanding and learning devoted to healthcare professionals and patients. In April 2020, ESOT launched a survey for transplant patients with the aim of gaining a deeper understanding of their experience and concerns. The programme of the learning workstream was developed on the basis of the findings from this survey; TLJ 2.0 speakers included transplant professionals as well as representatives of patient organisations, in line with ESOT’s commitment to patient inclusion.
Patients representatives and advocates were also actively involved in other workstream webinars and working groups, co-authoring some of the papers that will be submitted for publication in the upcoming months.
Within the framework of the ESOT Congress 2021 an ESOT twitter chat titled “Bridging the gap – the patient as a partner in ESOT” was held on March 17th, 2021.
The twitter chat focused on why it is essential that patients are an integral part of the transplant community. The guests of the chat were Colin White and Daniel Gallego, two active twitter ESOT Ambassador. The chat was moderated by Annemarie Weißenbacher and Olivier Aubert.
To contribute to the discussion and participate to the next #ESOTchat, please follow @ESOTtransplant on twitter.
The ESOT-ETPO (European Transplant Patient Organisations) alliance is a collaborative entity established by the European Society for Organ Transplantation (ESOT) and Transplant Patient Organisations that aims to bring together healthcare professionals and people with transplants.
Mission
The mission of the ESOT-ETPO alliance is to promote realistic medicine in organ donation and transplantation. The alliance aims to achieve this by empowering people with transplants, encouraging and facilitating a meaningful dialogue between patients, organ donors and their families, caregivers and transplant professionals to ensure that their views and experiences are represented.
The ESOT Hesperis course is an introductory course on organ transplantation aimed at young professionals who are entering the field and wish to gain an advanced overview on the key areas of transplantation.
The 2021 online edition of Hesperis, which kicked off on Monday, March 22, features weekly live sessions where participants and faculty have the opportunity to interact and discuss hot topics and case studies.
Some of the sessions feature special guests from the world of transplantation, and we are delighted to announce that patient representatives will join us for two sessions.
Jan Shorrok, Executive Officer at Give a Kidney, will join the first live session of the unit on Organ donation, on April 30, 2021, to share her experience as a kidney donor and her work with Give a Kidney.
Pisana Ferrari (AIPI – Italian Pulmonary Hypertension Association) and Daniele Cima will join the second live session of the unit on Recipient management, on May 14, 2021, to share their experiences and perspectives as transplant patients.
View the webinar recording to hear about the main concerns of transplant patients and transplant professionals and to learn about strategies to better cope with the uncertainty arising from the COVID-19 pandemic.
Listen to moderators Anna Forsberg and Peter Carstedt address some of the recurring concerns raised by participants.
Main topics:
Listen to panellists Giuseppe Feltrin and Marjo Lehtonen address some of the recurring concerns raised by participants.
Main topics:
View the webinar recording to hear about the main issues surrounding uncertainty whilst on a transplant waiting list. The first part of the webinar will include talks by a transplant professional and a transplant recipient, presenting their perspectives on waiting list-related uncertainties
View the webinar recording to hear about the main issues surrounding uncertainty in offering and accepting an organ. The aim of this webinar was twofold:
This online symposium was held on August 28th, in conjunction with the ESOT Congress 2021.
What do we know about physical activity after solid organ transplantation?
What is the patient experience with physical activity?
How can one get started and hold on?
This symposium addressed these questions while providing accessible information and practical advice. Speakers include physical therapists as well as people with transplants who will share their experience and insights.
The report details the evidence-based reviews that were carried out and the preliminary statements that were developed to produce methodologically solid, consensus-based guidance documents and to ultimately guide future research and clinical practice in transplantation. The outcomes of the TLJ 3.0 Consensus Conference are a significant milestone for ESOT Guidelines and brings us one step closer to achieving our mission of improving the outcomes for patients with terminal organ disease by means of transplantation, organ regeneration and substitution.
View the report to get an overview of the main topics discussed during the webinar
Representatives of patient organisations and healthcare professionals shared their experiences and exchanged ideas on the topic of “Uncertainty from a patient perspective” during the main sessions of the Learning Workstream at TLJ 2.0.
