ELPAT Publications

Schicktanz S, UWöhlke S.
The utterable and unutterable anthropological meaning of the body in the context of organ transplantation
Dilemata 2017, 27: 107-127.

Wöhlke S.
Self-determination in living organ donation: an empirically in-formed contribution to ethical issues in decision-making
Dilemata 2017, 23: 1-18.

Schweda M, UWöhlke S.
Age and generational relations in organ donation: An emerging field of empirical research and ethical controversy. In: W. Weimar and E. Massay (eds.): ‘Ethical, Legal and Psychosocial Aspects of Trans-plantation. Global Challenges’.
Pabst Publishers 2017, 44-52.

UWöhlke SU, Inthorn J, Schicktanz S.
The Role of Body Concepts for Donation Willingness. Insights from a Survey with German Medical and Economics Students. In: R.J. Jox, G. Assadi and G. Marckmann (Hrsg.): Organ Donation in Times of Donor Shortage. Challenges and Solutions.
Dordrecht Heidelberg u.a.: Springer 2015, 27-51.

Wöhlke S.
The morality of giving and receiving living kidneys: Empirical findings on opinions of affected patients. In: G. Randhawa and S. Schicktanz, (eds.): Public Engagement in Organ Donation and Transplantation (from the ELPAT Public Issues Working Group)
Lengerich: Pabst Science Publishers 2013, 144-152.

Martínez López M. V, Martín Nieto E. M, Cruz Piqueras M.
[Permission to investigate? Reflections on the ethical requirements of participant observation in the context of the family interview for organ procurement] ¿Permiso para investigar? Reflexiones sobre los requisitos éticos de la observación participante en el contexto de la entrevista familiar de obtención de órganos.
RECERCA. Revista De Pensament I Anàlisi 2022

Díaz-Cobacho G, Cruz-Piqueras M, Delgado J, Hortal-Carmona J, Martínez-López M.V, Molina-Pérez A, Padilla-Pozo A, Ranchal-Romero J, Rodríguez-Arias D
Public Perception of Organ Donation and Transplantation Policies in Southern Spain
Transplantation Proceedings, 000, 1−8 (2022)

Molina-Pérez A, Delgado J, Frunza M, Morgane M, Randhawa G, Reiger-Van de Wijdeveng J, Schicktanzh S, Schiksi E, Wöhlkej S, Rodríguez-Arias D.
Should the family have a role in deceased organ donation decision-making? A systematic review of public knowledge and attitudes towards organ procurement policies in Europe
Transplantation Reviews 2022, 36 (1)

Book Chapter: Molina- Pérez A, Rodríguez-Arias D, Delgado J.
Defining consent. Autonomy and the Role of the Family, p 43-63.
In Ethical Challenges of Organ Transplantation: Current Debates and International Perspectives.
Solveig Lena Hansen, Silke Schicktanz (eds.) Transcript (2021).

Randhawa G, Schicktanz S (Eds.)
Public Engagement in Organ Donation and Transplantation (from the ELPAT Public Issues Working Group)
PABST, 2013.

Jensen A MB., Hoeyer K
Making sense of donation: Altruism, Duty, and Incentives. I S. L. Hansen, & S. Schicktanz (red.),Ethical Challenges of Organ Transplantation Current Debates and International Perspectives (1 udg.).
Transcript Verlag 2021

Jensen A MB., Larsen J.B.
The public debate on organ donation and presumed consent in Denmark: Are the right issues being addressed?
Scandinavian Journal of Public Health 2020, 48(5), 480-485.

Mamode N, Van Assche K, Burnapp L, Courtney A, van Dellen D, Houthoff M, Maple H, Moorlock G, Dor FJF and Lennerling A.
Donor Autonomy and Self-Sacrifice in Living Organ Donation: An Ethical Legal and Psychological Aspects of Transplantation (ELPAT) View.
Transpl Int 2022, 35:10131.

Morla-González M, Moya-Guillem C, Delgado J, Molina-Pérez A.
European and comparative law study regarding family’s role in deceased organ procurement.
Revista General de Derecho Público Comparado 2021; 29.

Morla-González M, Moya-Guillem C, Rodríguez-Arias D, de Miguel Beriain Í, Molina-Pérez A, Ortega-Deballon I. Addressing organ shortage: An automatic organ procurement model as a proposal.
Clinical Ethics 2021: 14777509211011428.

Rodríguez-Arias D, Molina-Pérez A, Hannikainen IR et al.
Governance quality indicators for organ procurement policies.
PLOS ONE 2021; 16: e0252686.

Rodríguez-Arias D, Molina-Pérez A, Díaz-Cobacho G.
Death Determination and Clinicians’ Epistemic Authority.
The American Journal of Bioethics 2020; 20: 44.

Molina-Pérez A, Rodríguez-Arias D, Delgado-Rodríguez J et al.
Public knowledge and attitudes towards consent policies for organ donation in Europe. A systematic review.
Transplantation Reviews 2019; 33: 1. Epub 2018 Sep 22

Burnapp L, Kristof Van Assche, Annette Lennerling, Dorthe Slaats, David Van Dellen, Nizam Mamode, Franco Citterio, Willij Zuidema, Willem Weimar and Frank J.M.F. Dor
Raising awareness of unspecified living kidney donation: an ELPAT view.
CKJ: Clinical Kidney Journal 2019;10:1093/ckj/sfz067

Delgado J, Molina-Pérez A, Shaw D, Rodríguez-Arias D.
The Role of the Family in Deceased Organ Procurement: A Guide for Clinicians and Policymakers.
Transplantation. 2019 May;103(5):e112-e118

Massey EK, Timmerman L, Ismail SY, Duerinckx N, Maple H, Mega I, Papachristou C, Dobbels F.
The ELPAT living organ donor Psychosocial Assessment Tool (EPAT): from ‘what’ to ‘how’ of psychosocial screening – a pilot study.
Transplant International 2018;31(1):56-70. Epub 2017 Sep 21.

Columb S, Ambagtsheer F, Bos M, Ivanovski N, Moorlock G, Weimar W; ELPAT Working Group on Organ Tourism and Paid Donation.
Re-conceptualizing the organ trade: separating “trafficking” from “trade” and the implications for law and policy .
Transplant International 2017;30(2):209-13.

Gardiner D, Wind T, Cole B, van Mook W, Del Río F, Domínguez-Gil B; ELPAT Deceased Donation Working Group.
European Vignettes in Donation After Circulatory Death.
Progress in Transplantation. 2017;27(3):286-290. Epub 2017 Jul 4.

Shaw D, Georgieva D, Haase B, Gardiner D, Lewis P, Jansen N, Wind T, Samuel U, McDonald M, Ploeg R; ELPAT Working Group on Deceased Donation.
Family Over Rules? An ethical analysis of allowing families to overrule donation intentions.
Transplantation 2017;101(3): 482-7.

Thys K, Schwering KL, Siebelink M, Dobbels F, Borry P, Schotsmans P, Aujoulat I; ELPAT Pediatric Organ Donation and Transplantation Working Group.
Psychosocial impact of pediatric living-donor kidney and liver transplantation on recipients, donors, and the family: a systematic review.
Transplant International 2015;28(3):270-80.

Ismail SY, Duerinckx N, Van der Knoop MM, Timmerman L, Weimar W, Dobbels F, Massey EK, Busschbach JJ; ELPAT Psychological Care for Living Donors and Recipients Working Group.
Toward a Conceptualization of the Content of Psychosocial Screening in Living Organ Donors: An Ethical Legal Psychological Aspects of Transplantation Consensus.
Transplantation 2015;99(11):2413-21.

Frunza M, Van Assche K, Lennerling A, Sterckx S, Citterio F, Mamode N, Zuidema WC, Burnapp L, Weimar W, Dor FJ.
Dealing With Public Solicitation of Organs From Living Donors—An ELPAT View.
Transplantation 2015;99(10):2210-4.

Van Assche K, Sterckx S, Lennerling A, Mamode N, Citterio F, Frunza M, Zuidema WC, Burnapp L, Weimar W, Dor FJ.
The Relevance of Directive 2010/53/EU for Living Organ Donation Practice: An ELPAT View.
Transplantation 2015;99(10):2215-22.

Duerinckx N, Timmerman L, Van Gogh J, van Busschbach J, Ismail SY, Massey EK, Dobbels F; ELPAT Psychological Care for Living Donors and Recipients working group.
Predonation psychosocial evaluation of living kidney and liver donor candidates: a systematic literature review.
Transplant International 2014;27(1):2-18.

Jansen NE, McDonald M, Haase-Kromwijk BJJM, Sque M, Long-Sutehall T.
When are bereaved family members approached for consent to organ donation? Commentary from ten European member states.
Organs, Tissues & Cells 2014;17:101-13.

Thys K, Van Assche K, Nobile H, Siebelink M, Aujoulat I, Schotsmans P, Dobbels F,  Borry P.
Could minors be living kidney donors? A systematic review of guidelines, position papers and reports.
Transplant International 2013; 26: 949–60.

Lennerling A, Lovén C, Dor FJ, Ambagtsheer F, Duerinckx N, Frunza M, Pascalev A, Zuidema W, Weimar W, Dobbels F.
Living organ donation practices in Europe – results from an online survey
Transplant International  2013 Feb;26(2):145-53

Mamode N, Lennerling A, Citterio F, Massey E, Van Assche K, Sterckx S, Frunza M, Jung H, Pascalev A, Zuidema W, Johnson R, Lovén C, Weimar W, Dor FJ.
Anonymity and Live-Donor Transplantation: An ELPAT View.
Transplantation 2013;95(4):536-41.

Dor FJMF, Massey EK, Frunza M, Johnson R, Lennerling A, Lovén C, Mamode N, Pascalev A, Sterckx S, Van Assche K, Zuidema WC, Weimar W.
New Classification of ELPAT for Living Organ Donation.
Transplantation 2011;91(9):935-8.

Weimar W, Mühlbacher F.
ELPAT, the European platform on ethical, legal and psychosocial aspects of organ transplantation.
Transplant International 2008;21:921.

Publications from the HOTT project

(Nov 2012 until Oct 2015; see www.hottproject.com)
With the financial support of the Prevention of and Fight against Crime Programme of the European Commission, DG Home Affairs

Ambagtsheer F.
Organ Trade. PhD Thesis.
Erasmus University Rotterdam (2017)

Ambagtsheer F, Weimar W (Eds.).
Trafficking in Human Beings for the Purpose of Organ Removal. Results and Recommendations.
Pabst Science Publishers, Lengerich 2016; ISBN 978-3-95853-121-5

Ambagtsheer F, De Jong J, Bramer WM, Weimar W.
Reply to comment on the article: On patients who purchase organ transplants abroad.
American Journal of Transplantation 2017;17(1):305.

Ambagtsheer  F, De Jong J, Bramer WM, Weimar W.
On patients who purchase organ transplants abroad.
American Journal of Transplantation 2016;16(10):2800-15.

Ambagtsheer F, Weimar W.
The Hague Recommendations: Improving the nonlegislative response to trafficking in human beings for the purpose of organ removal.
Transplantation Direct 2016;2(2):e61.

Ambagtsheer F  & Weimar W.
Organ Trade: Knowledge, Awareness, and Nonlegislative Responses.
Transplantation 2016;100(1):5-6.

Ambagtsheer F, Van Balen LJ, Duijst-Heesters WL, Massey EK,  & Weimar W.
Reporting organ trafficking networks: a survey-based plea to breach the secrecy oath.
American Journal of Transplantation 2015; 15(7):1759-1767

Capron AM, Muller E, Ehrlich G, John M, Bienstock RE, McCarren M, Palmer R, Scheper-Hughes N, Siegel D, Yankov J.
Stimulating and enhancing partnerships between transplant professionals and law enforcement: Recommendations.
Transplantation Direct 2016;2(2):e57.

Caulfield T, Duijst W, Bos M, Chassis I, Codreanu I, Danovitch G, Gill J, Ivanovski N, Shin M.
Trafficking in human beings for the purpose of organ removal and the ethical and legal obligations of healthcare providers.
Transplantation Direct 2016;2(2):e60.

Gunnarson, M and Lundin, S.
The Complexities of Victimhood: Insights from the Organ Trade.
Somatechnics 2015;5(1):32-51.

Holmes P, Rijken C, D’Orsi S, Hol F, Gallagher A, Greenberg G, Helberg L, Horvatits L, McCarthy S, Ratel J, Scheper-Hughes N, Forsythe J.
Establishing trafficking in human beings for the purpose of organ removal and improving cross-border collaboration in criminal cases: Recommendations.
Transplantation Direct 2016;2(2):e58.

De Jong, J.
Trafficking in Human Beings for the Purpose of Organ Removal. PhD Thesis.
Utrecht University (2017)

Jong de J & Ambagtsheer F.
Indicators to Identify Trafficking in Human Beings for the Purpose of Organ Removal.
Transplantation Direct 2016;2(2):e56.

Lundin S.
Organs for Sale. An ethnographic examination of the international organ trade.
Palgrave, Pivot 2015;1-117.

Pascalev A, Van Assche K, Sándor J, Codreanu N, Naqvi A, Gunnarson M, Frunza M, Yankov J.
Protection of human beings trafficked for the purpose of organ removal: Recommendations.
Transplantation Direct. 2016;2(2):e59.

Van Balen LJ, Ambagtsheer F, Ivanovski N, Weimar W.
Interviews with patients who traveled from Macedonia/Kosovo, The Netherlands and Sweden for paid kidney transplantations.
Progress in Transplantation 2016:26(4):328-34.

 

Publications from the EULOD project

(March 2010-September 2012)
This project has received funding from the European Union under the Seventh Framework Programme of the European Commisssion

Lopp, L.
Regulations regarding Living Organ Donation in Europe. Possibilities of Harmonisation. Ph.D. thesis.
Pabst Science Publishers, Lengerich 2014.

Ambagtsheer F, Weimar W (Eds).
The EULOD Project: Results and Recommendations. 
Pabst Science Publishers, Lengerich 2013.

Lennerling A, Lovén C, Dor FJ, Ambagtsheer F, Duerinckx N, Frunza M, Pascalev A, Zuidema W, Weimar W, Dobbels F.
Living organ donation practices in Europe – results from an online survey.
Transplant International 2013;26(2): 145-53.

Demény E, Ambagtsheer F, Florea GT, Sándor J, Codreanu N, Beširević V, Weimar W.
Improving the Effectiveness of the Organ Trade Prohibition in Europe; Recommendations.
Chisinau, 2012.

ELPAT Books

ELPAT Proceedings Congress Rome 2016:
Massey EK, Ambagtsheer F, Weimar W (Eds.).
Ethical, Legal and Psychosocial Aspects of Transplantation. Global Challenges. Vol IV.
Pabst Science Publishers, Lengerich 2017.

ELPAT Proceedings Congress Rotterdam 2013:
Weimar W, Bos MA, Busschbach JJV (Eds.).
Ethical, Legal and Psychosocial Aspects of Transplantation. Global Issues, Local Solutions. Vol. III.
Pabst Science Publishers, Lengerich 2014.

ELPAT WG Public Issues:
Randhawa G,  Schicktanz S (Eds.)
Public Engagement in Organ Donation and Transplantation.
Pabst Science Publishers, Lengerich 2013.

ELPAT Proceedings Congress Rotterdam 2010:
Weimar W, Bos MA, Busschbach JJV (Eds.).
Organ Transplantation: Ethical, Legal and Psychosocial Aspects. Expanding the European Platform. Vol. II.
Pabst Science publishers Lengerich 2011.

ELPAT Proceedings Congress Rotterdam 2007:
Weimar W, Bos MA, Busschbach JJV (Eds.).
Organ Transplantation: Ethical, Legal and Psychosocial Aspects. Towards a Common European Policy. Vol. I.
Pabst Science publishers Lengerich 2008.