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Hellenic Cystic Fibrosis Association

Name: Πανελλήνιος Σύλλογος Κυστικής Ίνωσης

Name in English: Hellenic Cystic Fibrosis Association (HCFA)

About: Hellenic Cystic Fibrosis Association is the non-profit patient advocacy association for Cystic Fibrosis (CF) in Greece, based in Athens, one of the oldest patient organisations in Greece established in 1983. Our mission is to improve the quality of life of CF patients and their families throughout Greece. During its 40 years history, HCFA has managed to change CF in Greece, empowering the patients and their families, improving access to care, innovative treatments, lung transplants, supporting CF centers in Greece and raising public awareness on the disease, prevention and organ donation. In 2020 HCFA managed to ensure early access to the revolutionary triple combination therapy, saving the lives of Greek CF patients in critical condition and started the launch of the successful campaign “Breath Unlimited– Be a Life Donor” for supporting organ donation and lung transplants in Greece.

Country: Greece

Website: www.cysticfibrosis.gr 

Contact: cysticfibrosis.gr@gmail.com

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